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Stacey English

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Stacey English, left, works on balance and core strength with her 7-year-old daughter, Addison, in Houston on Friday, June 23, 2017. Stacey has modest desires for her daughter: Be able to eat without gagging and move both her arms. But since Addison’s occupational therapist went out of business this winter, the child with a rare genetic disorder has regressed in her fight to do even that much. (AP Photo/David J. Phillip)

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Stacey English, left, teaches her 7-year-old daughter, Addison, how to use the stairs in Houston on Friday, June 23, 2017. Stacey has modest desires for her daughter: Be able to eat without gagging and move both her arms. But since Addison’s occupational therapist went out of business this winter, the child with a rare genetic disorder has regressed in her fight to do even that much. (AP Photo/David J. Phillip)

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Stacey English, right, fixes the hair of her 7-year-old daughter, Addison, in Houston on Friday, June 23, 2017. Stacey said her former therapist, who went out of business, introduced Addison to basic life skills and even new foods “like smashing up crackers into a little bit of peanut butter.” (AP Photo/David J. Phillip)