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In this Feb. 6, 2014 photo, Kat Sullivan, 13, who has Marfan Syndrome, grabs hold of her wrist at her home in Champaign, Ill .Marfan is a tissue disorder that affects the long bones of the body, which can lead to the tall, thin build, long arms, legs, fingers and toes and flexible joints. (AP Photo/The News-Gazette, Robin Scholz) MANDATORY CREDIT

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