Alison Chandra

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In this July 26, 2016, photo taken by Alison Chandra, Chandra's son, Ethan, 3, of Middlesex, N.J., poses for a photo in Middlesex. Ethan suffers from heterotaxy syndrome, a rare genetic disorder that causes organs to form incorrectly or in the wrong place. Their story drew attention in June 2017 when Chandra shared a photo of a hospital bill for Ethan's latest heart surgery. The charges added up to more than $230,000 but Chandra owed only $500 after insurance. (Alison Chandra via AP)