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In this Nov. 19, 2019 photo provided by John Leyba shows Julia Vitarello visits her daughter Mila, who is fighting Batten disease, a rare fatal condition with no cure, in her room at Childrens Hospital in Aurora, Colo. Mila is the first person in the world to receive a drug customized for just one person. It was named Milasen. (John Leyba via AP)

In this Nov. 19, 2019 photo provided by John Leyba shows Julia Vitarello visits her daughter Mila, who is fighting Batten disease, a rare fatal condition with no cure, in her room at Childrens Hospital in Aurora, Colo. Mila is the first person in the world to receive a drug customized for just one person. It was named Milasen. (John Leyba via AP)

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